My Cervical Myelopathy Journal Introduction
I have done these videos to try and better understand my condition. I have found a lot of information online from medical professionals and although this is all fine, it doesn't mean much when its not in layman's terms. I haven't been able to find much in the way of 'people experience'.
I am at the beginning of my journey, although my symptoms started out 9 years ago it was assumed by my GP to be carpal tunnel and eventually as it got worse, I had to push them to investigate my symptoms and they then suggested it is likely to be MS or Motor Neurone's Diesease.
After a year of investigations I was informed in February 2019 that I would need an operation within 2 weeks or I would be paralysed from the neck down and unable to breath on my own.
I had the op within 10 days but it was all so quick I didn't ask what was actually wrong or many questions. On my return to hospital my physio said I have Cervical Myelopathy. She said I would need to wait to see my surgeon to ask too many questions.
I see him in about 7 weeks. I already have a long list of questions.
I am hoping when my 2 year old daughter is older she will be able to watch my journal and understand. Until 10 weeks ago she was the centre of my world and it has affected her, she has dealt with it all very well but I feel like I haven't been a good mum during this time. She isn't old enough to understand and she has lost a lot of the confidence that she had as she was secure knowing I would always be there. Then I wasn't there, then I couldn't pick her up. It broke my heart but I am sure one day she will be old enough to understand.
In the meantime I am hoping if anyone else watches these videos who suffers or knows of the condition then maybe we can have discussions to help better understand Cervical Myelopathy more.
I have recently joined (literally a week ago) the Cervical Myelopathy support foundation Facebook page and have found this very useful but I find people are always asking a lot of questions about varying symptoms, prescription medication, natural remedies and so on.
Hoping if we can get some discussions going on we can work some of these things out between us.
If you have taken the time to watch, thank you. Please come again, normally I am not an overly emotional person so I hope that I can use this experience positively and get back to some form of normal life
damage My Cervical Myelopathy Journey Introduction | |
| 3 Likes | 3 Dislikes |
| 35 views views | 1 followers |
| People & Blogs | Upload TimePublished on 25 Apr 2019 |
Không có nhận xét nào:
Đăng nhận xét